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MY PAGE YO SON IN PLACE OF REVELATION
Now I'm an adult with hearing loss, hearing children with husband and absolutely immersed in society and culture listeners. But once I was a child of 6 years with newly diagnosed progressive hearing loss with a hearing family who did not know quite what to do with me Beyond providing a "normal life" as they were advised by professionals. Which meant that I was never allowed to "be" hard of hearing.
So this time I put in the place of the son ... and this is what I wanted to say:
While attending a common school, I need to do some activity (recreational, art) with other children with hearing loss. The most important thing is that it creates or feel that I am the only one. I need a place to relax the effort I make to seem "normal", and share experiences and see how they manage others.
Please do not talk to the professionals, teachers, therapists, in front of me, as if I was not.
And although not old enough to decide, let me be part of decisions. Ofrézcanme simple but complete information about treatments that I take and why, on medications, on technological aids that I have to use.
If I am not comfortable with a professional, listen to me. There are many other professionals. Therapy should not become a torture. Sometimes, what you consider best for me is not what I do best.
Give me time. You may not want to use the headset at first, or do the exercises directed by a therapist. Just hurry up and put pressure I will refuse to help.
I will tell my peers what's wrong, when it sees fit.
Good intentions are far from good results. Please inquire for information. The teacher may locate me in the first bank because that's what they told me I should do, but then I'll have to watch all the time up and get tired soon. I am the one who must choose where to sit, where to be, which side I prefer to listen.
Please note that if social gatherings put background music or the guests are too many, I can not participate. I'm not antisocial or I have bad mood or I'm whimsical. I am deaf. I can not everything. But you can not ask others to avoid music or group meetings for me.
For the same reason, you may not enjoy birthdays, parties in halls or in any noisy environment. Noise me "void." I
I can join them, but also hope that my behavior is similar to those of others, is to ignore my needs.
regard to everyday life, it is generally better to ask for help or advice to people living with the same disability, as professionals. I can never
"do everything" and I'm just like hearing my peers without disabilities. It is necessary that you and I know my limitations, not having to fight windmills. And while I support and encourage me to accomplish what I can achieve.
I'm not a person with "different abilities". The ability to hear not replace any other. The term "politically correct" only serves to soothe the consciences of others. I do not serve anything.
The biggest problem I have in high school and college, is that I can not hear the teacher and take notes simultaneously. But I'll have the age to find a solution for myself.
Now I'm an adult with hearing loss, hearing children with husband and absolutely immersed in society and culture listeners. But once I was a child of 6 years with newly diagnosed progressive hearing loss with a hearing family who did not know quite what to do with me Beyond providing a "normal life" as they were advised by professionals. Which meant that I was never allowed to "be" hard of hearing.
So this time I put in the place of the son ... and this is what I wanted to say:
While attending a common school, I need to do some activity (recreational, art) with other children with hearing loss. The most important thing is that it creates or feel that I am the only one. I need a place to relax the effort I make to seem "normal", and share experiences and see how they manage others.
Please do not talk to the professionals, teachers, therapists, in front of me, as if I was not.
And although not old enough to decide, let me be part of decisions. Ofrézcanme simple but complete information about treatments that I take and why, on medications, on technological aids that I have to use.
If I am not comfortable with a professional, listen to me. There are many other professionals. Therapy should not become a torture. Sometimes, what you consider best for me is not what I do best.
Give me time. You may not want to use the headset at first, or do the exercises directed by a therapist. Just hurry up and put pressure I will refuse to help.
I will tell my peers what's wrong, when it sees fit.
Good intentions are far from good results. Please inquire for information. The teacher may locate me in the first bank because that's what they told me I should do, but then I'll have to watch all the time up and get tired soon. I am the one who must choose where to sit, where to be, which side I prefer to listen.
Please note that if social gatherings put background music or the guests are too many, I can not participate. I'm not antisocial or I have bad mood or I'm whimsical. I am deaf. I can not everything. But you can not ask others to avoid music or group meetings for me.
For the same reason, you may not enjoy birthdays, parties in halls or in any noisy environment. Noise me "void." I
I can join them, but also hope that my behavior is similar to those of others, is to ignore my needs.
regard to everyday life, it is generally better to ask for help or advice to people living with the same disability, as professionals. I can never
"do everything" and I'm just like hearing my peers without disabilities. It is necessary that you and I know my limitations, not having to fight windmills. And while I support and encourage me to accomplish what I can achieve.
I'm not a person with "different abilities". The ability to hear not replace any other. The term "politically correct" only serves to soothe the consciences of others. I do not serve anything.
The biggest problem I have in high school and college, is that I can not hear the teacher and take notes simultaneously. But I'll have the age to find a solution for myself.
If I have tinnitus, know that they make me nervous, anxious. Keep me patience. In the evenings I'm usually so tired that all I want is to take off my headset and not hear anything else. Reading
I become part of the world, society, culture. That there are always books in my power, as well as newspapers, magazines, encyclopedias. Take me to the cinema to see subtitled films. Ofrézcanme to read from recipes to instructions to operate a device. Read me like everyone else.
I know that I must make therapy and medical treatment, but I need time to play, to do nothing. I'm not overwhelmed with activities.
This is a golden rule: the doctors know how to cure, the speech therapist can help me speak better, the teachers know how to teach, the psychologist can help me understand certain things but none of them have disabilities. In that respect, I know more, I know how it feels, and that is my experience, my knowledge.
I overprotective over another child without disabilities. Nor praise each accomplishment with exaggeration. I am not a medical problem to be cured, I'm just a person with a problem.
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